I’m looking for a cure for intraoral surgical scars

DO YOU KNOW A DOCTOR, HEALTH PROFESSIONAL, PHYSIOTHERAPIST, CHIROPRACTOR OR OSTEOPATH WHO CAN TREAT ME?

My name is Nora. I was diagnosed with the painful rare disease called “Eagle Syndrome” years ago. Only 0,16% of all the people in the world suffer from it. It harshly affected my throat and voice. I underwent 2 risky head/throat surgeries and travelled 45 times to receive manual therapies abroad. I still suffer from the operation scars in my mouth, which cause many severe problems: chronic pain, a weak immune-system and a limited speech-capacity. 40 doctors have been involved, but cannot help me. My current treatments are expensive and ineffective. I really hope to find a cure.

For those who need Medical Details

What I need

  • Dissolvement of my intraoral scars
  • (which are hidden in the very back of my pharynx, palate and mouth/tongue base – caused by the 2 styloidectomies left & right)

Why?

The deep scars in the mouth lead to a lot of problems and pain, which get better when my scars get softer. Some therapies already achieved a reduction of the muscle tension & the release of the saliva into the mouth, but after a few hours the effect was gone and the pain came back.

Current status

  • Neuromuscular Dysfunction because of deep intraoral scar tissues in the pharynx, palate, mouth base, tongue base (right next to where have been the tonsils and the two styloid processes that all got resected at the surgeries years ago);
  • Blocked salivary glands (saliva is produced but accumulated in the glands – the liquid cannot be released from the glands into the mouth – probably because of little nerval destruction from the surgeries and the hardened muscles of the glands: sublingual gland, parotid glands, submandibular glands)
  • Dry mouth because of saliva accumulation in the glands
  • No gustatory sense
  • Dry mucosa of the vocal cords/larynx – very limited voice capacity
  • Severe muscle spasms in the throat & mouth
  • High tension of the scars
  • Neck pain, head pain, jaw pain, ear pain, larynx pain
  • Problems during: swallowing, tongue movement, chewing, eating, speaking

Treatments that I’ve already tried for years (without a long-lasting effect)

  • Intraoral Surgeries of the elongated bones
  • Physio therapy/ Manual therapy/ Osteopathy (extraoral & intraoral)
  • Fasciae treatment
  • Dry needling
  • Neural therapy (intraoral infiltration in the scars of Procaine/Meaverin/Lydocaine)
  • Traditional Chinese Medicine (tea)
  • Acupuncture
  • Electro-Acupuncture
  • Tuina Massage (TCM)
  • Cranio Sacral therapy
  • Lymph drainage
  • Electro therapy
  • Infusion therapy
  • Homeopathy
  • Energetic healing (Reiki, meditation)
  • Singing bowl massage
  • Hypnosis
  • Botox Injection
  • Aura Surgery

Contact me

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