My name is Nora. I was diagnosed with the painful rare disease called “Eagle-Syndrome” 4 years ago. Only 0,16% of all the people in the world suffer from it. I could not speak for more than 1 year, underwent 2 risky head/throat surgeries and flew 45 times to receive manual therapies abroad. I still suffer from the operation scars in my mouth, which cause many severe problems: chronic pain, a weak immune-system and a limited speech-capacity. 40 doctors have been involved, but cannot help me. My current treatments are expensive and ineffective.